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Keratoconus: Update the Third - Walking on the Edge
I don't really have a plan...
foresthouse
foresthouse
Keratoconus: Update the Third
Dear Friends, Acquaintances, Complete Strangers, and Everyone on the Internets (possibly here via cleolinda):

I love you all, you wonderful, wonderful people. I really do. <3

As those of you who follow my journal know, I've posted a few times now about the experimental surgery I will be having (this coming THURSDAY, O_o) to attempt to halt the degeneration of my corneas due to the eye disease keratoconus. I've also posted about the fact that due to the experimental nature of this treatment, insurance won't cover it, and I am in real financial difficulty. Some of you, my wonderful friends, have already offered to help with this, and as I responded individually, I really am SO touched by that, but wasn't sure if I should accept your offers of help.

However, I've talked at length about the whole situation (not for the first time) over these last few days with my good friend cleolinda, and she basically convinced me that there are some situations (like necessary medical procedures) where it's ok to admit that you need a little help. And after a lot of thought I told her that yes, I thought she was right, and maybe I should tell you (my friends who've offered help) that I am grateful for your offers and would not mind a little help.

And then the wonderful cleolinda surprised me by posting about my situation, with instructions on how to send financial help my way, and some people have already, almost immediately, donated some funds to help with my expenses, and you guys, I am just so, so touched. People I know, people I don't even know - I'm actually, literally, not-even-kidding-you getting teary over here. I'm...thank you. Every one of you who's been kind enough to send money to a friend, an internet friend, or even a complete stranger who's in need is a wonderful person, and I thank you with all my heart. I really do. <3 (And also a thank you to the person who donated with the added note to "fix those eyeballs" - it made me laugh.) I just don't even know what to say except that just knowing that there are people out there who are that kind and willing to help someone in need is as wonderful as the money itself. (And for all of my friends who've been asking if they can help, now I have an answer for you. And thank you. Lots and lots of thank you.)

...

As far as the upcoming surgery itself goes - I've just picked up the necessary medications that I will need both before and during/after the surgery, and have arranged for my sister to pick me up at the end (she has a small child, so I don't want her to have to wait through the whole 2-3 hours or more that it will take) and take me home. I'm making sure I've got things put away and have some food in the apartment (right now if you opened the door to the refrigerator all you'd see is some very cold crickets trying to indicate how cavernously empty it is, seriously) so that for the weekend of my recovery, I won't have to go out. I don't actually know exactly what state I'll be in afterwards. I've been told there's some pain (apparently not during, due to the medications, but afterwards, at least on the first day or so) and that I'll basically be at home resting all day afterwards (I assume they will give me more specific directions before the procedure.) And I know that in some cases it does things to your vision for a bit right afterwards. So I don't know when I'll be able to let people know how it went, but I DO have the Voice Post function keyed into my phone, so hopefully I'll at least be able to do that. Or call Cleo. I will certainly keep people posted.

I can't believe things happened so quickly in terms of going from "will I need to have something done" to "you're going to go have the procedure this week." I'm...both calm and nervous at the same time. But mostly, grateful that there's something, even in trial stages, that can be done, and feeling very unworthy but grateful to everyone who's donated to help me out thus far, and am actually looking forward with hope to a time in the near future when seeing won't be quite so painful.

And I don't even know what else to say except thank you again.

xo

ETA of Tuesday

Just a little update to say more thanks for the help people have continued to send. It is like a stone being slowly lifted off my chest to feel even a bit of the impending debt disappearing. Many thanks.

Tags: , ,
Trixie feels: touched touched

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Comments
eventide82 From: eventide82 Date: October 19th, 2010 04:10 am (UTC) (current file)
Good luck! I'll be keeping my fingers crossed for you.
foresthouse From: foresthouse Date: October 19th, 2010 04:24 am (UTC) (current file)
Aw, thank you!
queenanthai From: queenanthai Date: October 19th, 2010 04:16 am (UTC) (current file)
Well. We'll take care of you, dear. Expect a tiny bit of cash when Karl makes his next deposit.
foresthouse From: foresthouse Date: October 19th, 2010 04:24 am (UTC) (current file)
Aw. Well I know you guys don't have a ton either, so really, don't do anything that makes it hard for you guys. <3
particle_person From: particle_person Date: October 19th, 2010 04:21 am (UTC) (current file)
Good luck! (You're only getting one eye done, so I'm sure you'll be able to see well enough to hit phone post, right?)
foresthouse From: foresthouse Date: October 19th, 2010 04:25 am (UTC) (current file)
Thanks!! And I assume so, unless the drugs *really* mellow me out too much. Heh.
txvoodoo From: txvoodoo Date: October 19th, 2010 05:21 am (UTC) (current file)
MASSIVE hugs. I wish I could wave a wand and fix it.

I'll be thinking about you!
foresthouse From: foresthouse Date: October 20th, 2010 03:41 am (UTC) (current file)
Thank you! (And me, too.)

*hugs*
addygryff From: addygryff Date: October 19th, 2010 09:00 am (UTC) (current file)
Yes, let's fix those eyeballs! With SCIENCE!

Good luck, Em. *hugs*
foresthouse From: foresthouse Date: October 20th, 2010 03:41 am (UTC) (current file)
Hee. With SCIENCE. Science can fix ANYTHING!

Thanks. *hugs*
(Deleted comment)
foresthouse From: foresthouse Date: October 20th, 2010 03:42 am (UTC) (current file)
Thank you!
allochthonous From: allochthonous Date: October 19th, 2010 02:51 pm (UTC) (current file)
Good luck good luck! Surgery is always a bit scary, especially on the eyes, but will be keeping everything crossed for you!
foresthouse From: foresthouse Date: October 25th, 2010 01:53 am (UTC) (current file)
Belated thanks for the good thoughts.
unlucky_bear From: unlucky_bear Date: October 19th, 2010 02:58 pm (UTC) (current file)
Good luck! I'm sure the surgery will go fine. I will send good thoughts your way, though.
foresthouse From: foresthouse Date: October 20th, 2010 03:49 am (UTC) (current file)
Thank you!
library_of_sex From: library_of_sex Date: October 19th, 2010 03:11 pm (UTC) (current file)
There is no one on your flist who could read about your surgery and not be rooting for you. I really hope everything goes smoothly before, during, and after the surgery.

It's so uplifting to know that you are getting some financial help. You deserve that and much more from your flisters, my dear! *HUGS*
foresthouse From: foresthouse Date: October 20th, 2010 03:50 am (UTC) (current file)
Aw, thanks. *HUGS*

And yes - it's like a stone being slowwwwly lifted off my chest to know that even a bit of the financial difficulty is disappearing.
doctoraicha From: doctoraicha Date: October 19th, 2010 11:44 pm (UTC) (current file)
I don't know what you guys on the flist are thinking, but maybe we could do a fundraiser auctiony thing to help a little more than just our individual donations?

Most of you are probably really creative in some way, whether it's sewing, woodwork, fic writing, or icon making. Do you think some kind of auction would work? Would anyone like to contrubute items? Or just maybe help boost the signal on one?
foresthouse From: foresthouse Date: October 20th, 2010 03:51 am (UTC) (current file)
I actually think that sounds like a nice idea, because then people would actually be getting something for helping - but I don't have Clue One (or time, sadly, with the surgery coming up so soon) to organize something. Hrm.
cutebutpsycho99 From: cutebutpsycho99 Date: October 20th, 2010 04:16 am (UTC) (current file)
Sending you nothing but good vibes and well wishes. I hope everything works out for you and I'll be thinking of you (and possibly fretting).

Above all else, we need your vision good so you don't accidentally walk into a lake at NADWCon.
foresthouse From: foresthouse Date: October 25th, 2010 01:54 am (UTC) (current file)
Belated reply: you make me laugh, heeeee.

PS I'll make sure and bring my bathing suit, just in case. :D
quorothorn From: quorothorn Date: October 20th, 2010 05:38 am (UTC) (current file)

Not sure if this is useful or not...

"I don't actually know exactly what state I'll be in afterwards. I've been told there's some pain (apparently not during, due to the medications, but afterwards, at least on the first day or so) and that I'll basically be at home resting all day afterwards (I assume they will give me more specific directions before the procedure.)"

The aftermaths of my own eye surgeries varied quite a bit: they sort of blur together, now, but with at least one I felt fine afterwards, whereas with another I couldn't open my eyes for some time after waking up post-surgery, and then spent a few days at home wandering about in a pained haze (which I feel slightly guilty about, because me being silent for several days running rather disturbed my family).

So here's hoping your surgery ends up being like the one where I was in good enough condition to pester quiz my Mom literally immediately upon waking up in terms of the recovery period. May the Force and God be with you, my sympathetic thoughts are with you and my fingers are metaphorically/intermittently physically crossed, go in the Light, et cetera.

And yeah, IIRC they'll give you specifics on arrival.
foresthouse From: foresthouse Date: October 25th, 2010 01:54 am (UTC) (current file)

Re: Not sure if this is useful or not...

Belated thanks for sharing your experiences - fortunately I wasn't in too bad shape after the procedure. Whew!
doctoraicha From: doctoraicha Date: October 20th, 2010 07:50 pm (UTC) (current file)
Ok: Here you go.

http://community.livejournal.com/foresthouseeyes/

If all this is ok with you, please let me know and if you still have time, please post about it before the surgery. I'll take it from here.
foresthouse From: foresthouse Date: October 25th, 2010 01:52 am (UTC) (current file)
I know I already said it, but thanks so much for all of this.
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